iPad Motion Sickness Syndrome

I have friends who’ve achieved and accomplished their whole lives.

Here, on the 11th of April, while I look out the window at the jungle of a yard that keeps my house cool in the summer, my friends’ stories stand out in my thoughts.

Meanwhile, my sister and I (with help from my wife and mother) assemble a set of notes and medical reports to give to medical experts to help understand where we can go to get a firm (or as close to firm) diagnosis for my father’s medical predicament(s).

The tree leaves and limbs do what they do best when breezes pass over the undergrowth, grabbing my attention as joggers and walkers avoid speeding cars on the road ahead.

Disco light dances across the window screen and onto the end table holding up a power strip, grow lamp, computer monitor, scented oil lamp, 3Com modem cable, incense bowl, light timer and a book a friend gave me titled “It’s a Young World After All.”

I am open to hearing and reading about alternative views concerning the history of our species.

I am willing to accept my friends’ opinions about their achievements and accomplishments.

I do not fret about belief systems in the majority or the minority and how they may or may not sway the thought sets of people both young and old like the wind shapes the forest around me.

There aren’t as many seedpods on the redbud outside the window as there were last year.

There are thousands of people who buy handguns and rifles every year and will never use them, storing them for a collection or trading them for something that looks more useful than the ones they first bought.

It is part of our global cultural interaction that drives some to buy weapons for self-protection on an active, daily basis.

There are those who travel great distances to provide basic medical care and deliver simple foodstuff in order to raise the standard of living in regions of the world not well-connected to local/regional caring social networks.

And then there are the few who seek membership in the Galactic Exploration Society.

In this moment, when the actions of others — friends, family, acquaintances, and instantly formed/lost friendships — find spaces in my thoughts, I look around the room of my study/meditation zone and wonder how/if happiness is contagious.

Some days I pursue the wrong activities.

My father is a man of action more than contemplation.

I have always been more of a man of contemplation rather than action.

From my father’s U.S. Army days in Germany during the Cold War to his most recent days of teaching students at ETSU as an adjunct professor, he found happiness in social engagement.

I find happiness in analysing interesting data more than in stressing pre-arthritic joints while swinging a scythe.

Both of us are products of the influences of ancestors, peers, descendants, and commercial interests.

My father grew up to put country first.

I grew up to put planetary exploration first.

The influences upon him influenced me.

The same goes for the achievements and accomplishments of my friends.

The Sun heats the planet and air pressure changes create wind which passes through the forest, influencing my thoughts and the thoughts of people passing in front of my yard.

Staring at an iPad, my head bent down while my finger slides news articles across the screen, like the scenes around me flashing past when I’d hold on to the rails of a merry-go-round during recess in elementary school, causes motion sickness.

While telling the tale of our species from a long perspective, how do I incorporate the images above into one where we’re looking at our achievements and accomplishments that’ve put people on the Moon and cybernetic explorers on millennial-long journeys?

It’s not the brain of Stephen Hawking that I want to preserve — it’s his thought patterns that are interwoven with the society around him I want to perpetuate, ensuring that they continue to evolve unabated by the physical presence of a brain or a body bound to a wheelchair.

My father, however, is a different story.  His physical AND mental presence are both key parts of what he means to me and my desire to push our species beyond primal tendencies to create dystopian nightmares where survivalist weapon hoarding is considered normal behaviour.

It’s also more than that but I’ve allowed myself to become a mortal human, subject to daily interruptions of bigger dreams, distracted from the plan set in motion by a group of people I’ve spun into a literary device called the Committee to capture the attention of those prone to primal thought patterns so that we can achieve a goal 13,904 days from now with all 7+ billion of us fully involved as sets of states of energy in the visible part of the universe with which we’re most familiar.

Are hopes and dreams intimately tied to happiness?

Perhaps.

How much does the passing of a single redbud leaf in front of the window have to do with dust devils on Mars?

Do you understand the immense distance between our planet and any celestial body with potential compatible communicable sets of states of energy that would interest us more than as laboratory experiments?

A lesson I learned one summer during sales training week for Southwestern Book Company decades ago still applies today:

The story concerns twin boys of five or six. Worried that the boys had developed extreme personalities — one was a total pessimist, the other a total optimist — their parents took them to a psychiatrist.

First the psychiatrist treated the pessimist. Trying to brighten his outlook, the psychiatrist took him to a room piled to the ceiling with brand-new toys. But instead of yelping with delight, the little boy burst into tears. “What’s the matter?” the psychiatrist asked, baffled. “Don’t you want to play with any of the toys?” “Yes,” the little boy bawled, “but if I did I’d only break them.”

Next the psychiatrist treated the optimist. Trying to dampen his outlook, the psychiatrist took him to a room piled to the ceiling with horse manure. But instead of wrinkling his nose in disgust, the optimist emitted just the yelp of delight the psychiatrist had been hoping to hear from his brother, the pessimist. Then he clambered to the top of the pile, dropped to his knees, and began gleefully digging out scoop after scoop with his bare hands. “What do you think you’re doing?” the psychiatrist asked, just as baffled by the optimist as he had been by the pessimist. “With all this manure,” the little boy replied, beaming, “there must be a pony in here somewhere!”

That, my friends, is why we get up in the morning, making miracles every day.  No matter how much we may be distracted by the mundane, or even happy being perfectly anonymous, there’s always a chance that pony will appear out of nowhere and change our perspective.

In fact, I guarantee it will.

Look at me.  I never thought a tablet PC could cause motion sickness until today, which has completely changed my desire to write the Next Great App.

Where is Watson?

Instead of coding my new app, I’m sitting here, pondering the itches at my elbows that hint at a poison ivy infection picked up from hacking away the brush in the front yard ditches.

Brush?  A generic term, standing in for periwinkle (both Vinca major and its variegated leaf variety), privet, sweetgum, hickory, cedar, sumac, poison ivy, Virginia creeper, forsythia, deciduous ivy, and an unknown set of grasses that manage to push up into the sunlight.

Hackers aren’t just mainly guys who try to script their way into computer systems.

Speaking of which, where is that omniscient Watson computer system that can look at a person’s EMR set and determine one’s major illnesses?  Do I have to keep depending on the limited brainwave combinations of people to assess my father’s health?

Hey, I’m all about socialising in the moment, getting to know people and their motivations, giving back to them whatever makes them feel happy/wanted/needed/fulfilled.

However, I want most of all to put our social network to use for the sake of my father and his nuclear family right now.

Otherwise, I’ll open up the case that cradles the crystal ball and share with you the next few decades and centuries of technological advances that will make a subset of our global population very successful, including the means of complete ownership of political officeholders, with no cares about hiding how our population really works in every so-called enlightened age.

Do you know how many people’s backs, both local and foreign, you’re living on to create the time you call leisure and the objects you call luxury?

Do you know how many people, both local and foreign, are living off of you to support the time they call leisure and the objects they call luxury?

I’ll save those questions for a scenario in a future chapter of the story of our lives together.

Time to return to writing my app.  After all, so far I haven’t found a way to get apps to write themselves by reading my thoughts and figuring out exactly what I want and how to implement it on incompatible technology platforms, just like I haven’t found an automatic way to get doctors to act as one “the buck stops here” stop to solve my father’s medical problems.

I’ll catch up on thanking others soon.

Cheap purchase of the day: keyboard/cover for iPad2

Blog as health chronicle…

Question to self: am I learning anything new here?  No.  These are some of the same issues I already faced and answered when dealing my with wife’s mother and brother.  But sometimes life is repetition in service of friends and family.  In other words, it’s a new learning experience for my mother and sister.  Let it be so.  You, kind and patient reader, may learn, too, and thus these blog entries will help others in need when emotional stress runs high and logic has taken a holiday to warmer shores.

Medical inquiry answered as written by case management [imagine “sic” in the right places and “sick” in the write places]:

Hello Mr. Hill. I will answer all of your questions to the best of my ability. I forwarded this onto the attending physician and you may end up needing directly talk to him again.

1. We have a Senior Psychological Examiner on staff that performs cognitive testing. These tests require active participation and often patients with aphasia have difficulty completing the items needed for accurate testing. Upon your father’s last admission, he was seen by the examiner and I will provide you a copy of the assessment. Further assessment may need to be made as speech or more basic communication skills develop. Speech and Occupational therapy will also be working with your father on cognition during his hospitalization at the rehab hospital.

I spoke to the attending physician about the diagnosis of FTLD and he said this may be followed after his rehab stay, possibly by a neurologist as it will require more testing.

2. The attending physician said he will continue medication began at HVMC.

3. Your father’s history and physical is in his chart for both his admissions and I would be happy to provide you with a copy. Inside this document is the diagnostic results preformed at HVMC which includes an EKG and an echocardiogram.

4. I would be happy to assist your mother in the completion of paperwork to acquire the long term disability insurance.

If you would like we can plan a family conference where we can sit down with a nurse, a Speech Therapist, an Occupational Therapist, a Physical Therapist, and the Psych Examiner. You are also free to invite the VA Social Worker that I have been talking with- or anyone else that you feel may be of value in attendance.

If there is anything else I can do I would be more than happy to help.

My sister will now step in and get involved, as she wants, to answer lingering questions.  Our mother’s health is of concern here, too, while we decide where to best put her husband (and our father) to spend his last days in the least confusing, most comfortable place before he finds eternal rest, whenever that may be.

The saga continues…

My father, the case in point/counterpoint

…we’re all overwhelmed with this.  Today, Dad’s friend, a lawyer in south Florida, informed us that Florida law may consider Dad’s power of attorney (POA) signed in Tennessee invalid for the sale of the house in Florida because recent Florida legislation requires a POA to have witnesses in addition to a notary signature.  Dad’s POA only has a notary’s signature.  The Florida friend/lawyer’s investigating it more.  I talked with Dad’s attorney in Tennessee this morning and he said he is willing to defend the power of attorney he witnessed as a notary.

In a little while, I’m heading over to see Dad and then drive home to attend to my wife’s health (and my sanity).  Hopefully, Dad is stable enough to keep getting rehab for a few days and Mom can get some rest.  Friends will bring food to Mom over the weekend.

BTW, last night, while Dad’s childhood friends, Philip and Terry, were visiting, Dad exhibited behaviour that indicates his thought patterns are very much mixed up, including putting the left houseshoe on the right foot, and then picking up a left tennis shoe to put on the other foot.  He was able to tie a knot, though, and did, for the first time, lean over to kiss Mom goodbye when we left, so Dad’s thoughts are a mix of logical and illogical.

For instance, the bedrails were up and Dad kept trying to operate the buttons on the side of the bed to lower the rails, which didn’t work, but somehow he knew how to push one button to raise the headend of the bed to make watching TV more comfortable (behavioural feedback mechanisms are interested to observe, even in my father, the former professor).

He would grab the bedrail and pretend to climb over but look confused when he saw how steep it was from the bed to the floor and lean back into the bed.  He saw Terry get in the wheelchair and then he decided he wanted to get in the wheelchair so we got him in it and let Philip take him for a spin around the rehab center.  The nurses and techs said that riding in the wheelchair is Dad’s favourite activity right now; they encouraged us to do give him wheelchair rides as much as possible for his mental health.  Interestingly, sometimes he can walk on his own and sometimes he’s like a ragdoll.

Terry said that this behaviour is normal for one of her grandchildren and we’re trying to get Mom to accept that Dad is like a little autistic child, who needs lots of love and encouragement no matter how odd his behaviour may seem at times.  Just declare it Opposite Day and go with the flow.  I think I’ll buy Dad some children’s books with pictures of cars — he loves to stare at the TV when a car race is on.

BTW, I sent an email to the case manager at the rehab hospital, asking for assistance in getting some questions of Mom’s answered:

  1. The Rehab Hospital brochure mentions having a neuropsychologist on staff.  Why hasn’t the neuropsychologist reviewed Dad’s case and performed a cognitive test on him yet?  Will the neuropsychologist be able to tell if Dad has FTLD in addition to ALS, bulbar option?
  2. Will the attending physician be prescribing Rilutek for Dad now that Dad has been diagnosed with ALS by the Medical Center staff?
  3. Will the Rehab Hospital be able to order a heart echo/ultrasound test that was not completed by the Medical Center?  If not, can they assist in getting it performed offsite?
  4. Can the case manager assist Mom in filling out paperwork in order to submit a claim for Dad’s longterm care insurance policy?

There are days when I’m not a happy-go-lucky, patient man.  Today is one of those days — just get me the answers I want and we can both move on to other subjects.  Thank goodness I have a drive of five hours on which to focus my attention on mindless meditation.

Time to make a pledge to WETS-FM and then hit the road with tiny particles of rubber rubbed off through the heat and friction factor.

More thanks to give: Dr. Mann, NE State nursing students such as Miriam (as well as their instructor)…

Flowers for Algernon’s World According to Garp

Both my mother and I, tired from the up-and-down discoveries, research and changes of/about/for my father, experience back pain and stiff necks.

That in itself is not scary.

Nothing is scary.

Some forms of ALS are attributed to environmental factors.

Some neuromuscular diseases/syndromes are first diagnosed by treatment of back pain and stiff necks.

That in itself is not scary.

Some things are scary.

Writing this blog entry is scary enough without thinking there’s a local environmental factor or two (and probably not Max Factor but who can be sure that all the ingredients in cosmetics are safely influencing the environment while heating in the sunlight and mixing with methane in landfills?).

Any one who has common sense will remember that the bewilderments of the eye are of two kinds, and arise from two causes, either from coming out of the light or from going into the light, which is true of the mind’s eye, quite as much as of the bodily eye.

You see, humor is a set of scenes folded together like origami, which is, as you know, a combination of the words “original” and “pastrami,” not, as you might think, of the words “O” (as in the exclamation, not the Story of…), “rig” as in to construct something or fix a match (but possibly as in killing off large portions of the Gulf of Mexico), and “ami,” which some interpret as the acronym for the american meat institute but actually stands for the German colloquialism of the indigenous American people of Taiwan who use ambient intelligence to predict world events far in advance of us ever living as a world civilisation to prove their validity.

Therefore, watching the rise and fall of my father’s life in retrospect, with a partially predictive eye on the future, turns intelligent people into the bumbling idiots all of us are on a daily basis.

Because I’m tired, emotionally drained and otherwise able to hold a fork in my left hand while tapping the fingers of my right hand on a tablet…I’m not even sure where that image was going, it was so plain and ordinary.

Well, except to say perhaps my father, whose mental state is such that he knows how to put a shoe on and tie a lace into a knot but he doesn’t know a left shoe from a right shoe or even what type of shoe he put on one foot while picking up a different type of shoe to put on the other (and unfortunately, he isn’t Patch Adams trying to be funny), falling just short of ornery when someone tries to get him to put the correct shoe on his foot, whatever that means…I’m not even sure where that image was going, it so plain and ordinary for someone in his condition.

I took my mother to her first ALS support group session tonight, meeting professionals like Michelle, who has worked in the dental industry for over 30 years and had several useful tips for people with swallowing difficulty and/or advanced stages of ALS to maintain dental health, as well as meeting family members of ALS diagnosees and one ALS diagnosee himself.

Oh, the tangled webs we weave in our social interaction.

I just want to be that hermit living in the woods, digging ditches by day, that my mother reminded me again yesterday I said I wanted to be when I grew up.

Instead, I’m here, at this keyboard my father used for years.  Well, no, this keyboard is only a year or so old, belonging to the set of accessories/peripherals that went along with the desktop minitower Dell PC labeled inspiron 531 that uses Windows XP and is probably older than I thought.  Anyway, I sit in the chair that has rolled back and forth in front of this old student desk that my father has used for a computer station lo these many years.

Sounds bounce around in my thought set, mixing languages, nonsense sequences and other imagery one can associate with the upbringing of a member of our species, this set of states of energy devoted to getting more Earth-based sets of states of energy off this planet and away/out.

The opposite of the hermit’s dream.

‘Tis easy to be mixed up.

‘Tis easier to apply the mix to practical solutions, rather than figuring out the relationship between Solutia and Monsanto or ALS and FTLD.

Thanks to many, including Marc, Andy, Sagar, Barbara (happy belated birthday), Pal’s #13, Traci, Monica, Patty, Daniel, Christine, Allison, and many more…

This is Manic Rick Hill*, signing off before the caffeine overload (an ode to Pepsi is due except I don’t want to diss my cousin Barry’s employer, Coca Cola) kicks in and assists/facilitates my burst of wordiness that has no meaning in the weoinb2323:”3$^T#NdSLKER.

*you have to guess which Rick Hill am I, having a name that is rather commonly uncommon in these parts:

Fears and Retreads

In the past few weeks, I have returned to the joy of reading the local newspaper, a major source of information in my youth.

I have also sat and analysed the relationship between my father and myself, my mother and myself, and my father and my mother.

The last two sentences have given me pauses not associated with writing an app that makes Morse Code fun, exciting and optimally efficient as a modernised means of communicating.

But I digress.

No, take that back.

I regress.

I sit in front of the glowing, pixelated dots of energy one tends to call a computer monitor, although I’m not really monitoring the computer as much as I’m using its interface between myself and the wide world of webs we’ve developed as an extension of our natural need for nurturing.  [Is the computer monitoring me, then?]

That is (i.e.), for example (e.g.), ergo, ipso facto, our permanent pacifiers (as opposed to Pacific pacifists) we’ve adopted as our own.

Computers of the desktop or laptop kind.

Mobile phones.

Tablet PCs/phones.

The 21st Century version of the security blanket.

WAAAAAAAHHH!!!  Mommy, I can’t update my social media status!!!!

Who would’ve thunk it when we were two-year olds shouting, “No! No! No!,” that our two-year olds would be wailing for their touchscreen devices instead of plastic nipples to stick in their mouths?

Indeed.

My father values a toboggan like I value writing blog entries.

My mother hovers over my father like a nervous first-time parent.

Together, the last two sentences tell me a lot about myself and my only sibling, a younger sister.

I want to call 9-1-1 and make up some crazy tall tale in order to get my entry in the local newspaper column, the Police Blotter (which, of course, many local kids are calling the Po’ Sleaze Blighter), our own version of News of the Weird, which means we don’t have to syndicate the one which its author, Chuck Shepherd, has apparently grown tired of writing.

Well, well, well…time to go be nice to people in my hometown.

Laughter in Medicine

My father has always been a serious fellow around me but he has had his funny moments, too.

When I was in secondary school, my father chaperoned many an event, earning himself the nickname “Cool Dad.”

So, while I mentally compose funny bone ticklers to flesh out here in later blog entries, today’s info-stuffed minimal verbosity includes two links for those seeking silly respites despite serious riffs on ALS-related syndromes/diseases: